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Breast Cancer Surveillance Consortium Research Resource (BCSC)

Cohort Collaboration Contact

If interested in collaborating with the cohort on a project, please contact:

Principal Investigators

    Cohort Website

    The Breast Cancer Surveillance Consortium (BCSC) is a resource for breast cancer research. We have the nationĀs largest collection of mammography data from breast cancer screening. Established in 1994 in response to the 1992 Mammography Quality Standards Act (MQSA), the BCSC develops and conducts collaborative research projects that use common data elements contributed by its network of seven mammography registries across the United States.

    Funded by the National Cancer Institute (NCI), the BCSC evolved into a national resource for population-based research. During 1994-2011, R01 and cooperative agreement mechanisms were used to fund data collection by the mammography registries and data submission to the BCSC Statistical Coordinating Center (SCC), which pooled the data. Active BCSC mammography registries include the Carolina Mammography Registry, Group Health Registry, New Hampshire Mammography Network, San Francisco Mammography Registry, and Vermont Breast Cancer Surveillance System. Two additional registries, the inactive Colorado Mammography Project and the affiliated New Mexico Mammography Project, were funded from 1994 to 2005. The pooled database, now archived, is central to the BCSC Research Resource (BCSC-RR) and includes pooled data from the seven registries.

    In 2011, the NCI awarded a contract to the SCC to create the BCSC-RR and make the resource widely available to the scientific community. The BCSC-RR provides reliable and comprehensive data on breast cancer screening and followup based on longitudinal records from individuals seen in community practice, linked to breast cancer outcomes, to understand the public health impact of screening. It contains demographic, risk factor, mammography, pathology, and tumor, and vital status data from 1994-2009 on >2.3 million women with >9.5 million mammograms and >95,000 breast cancers.